I don’t think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore.
She was gonna come over yesterday and I had to cancel. She asked if I can’t hang out later that day. When I said i won’t feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and “joked” that I’m just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her it’s a normal thing for me.
“But you got the diagnosis now, aren’t you better?? I thought you’ll get better now”
She was honestly surprised and it made me realize a thing. They don’t get it. They don’t get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That it’s a forever thing. That that one day we felt good a week ago was just a bright spot and doesn’t mean we won’t need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when we’re 70.
Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think we’re being dramatic and pessimistic.
And I don’t think they’ll ever get it, cause to get it you need to live it.
And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe it’ll help others understand
Hello it’s me Lexa and this post is relevant again as I just had the
Legit Same Talk with someone and I exhausted my number of fucks to give
Oh my god I literally had this conversation with my mother an hour ago.
Mum: “So yeah, I was thinking that when I come down we could do visit an art gallery or a museum or something.”
Me: “I’ll have to see if I’m up for it, I’ve been going through a rough patch. I might not have the energy.”
Mum: “But you love art galleries.”
Me: “I know. What part of ‘it hurts to walk long distances now’ is hard for you though?”
lost a lot of “friends” when i ran entirely out of fucks and started responding to this kind of shit with the dictionary definition of “chronic” and “fatigue”.
I try to get my friends excited about the idea of just… I dunno, coming over to my house with their laptop so we can just sit together with Netflix and chatting as much as I have energy for and play games next to each other or something. It’s hard. I would LOOOOOVE to get out of the house and do all the partying and museums and such that I get invited to, I genuinely 100% would love that, but I can never know day-to-day what I’m even capable of. I’ve been blessed with a lot of understanding friends, but far more who have just… vanished.